Actually, I was not told a whole lot of anything with regards to Down syndrome other than to "go make an appointment with cardiology and contact early childhood intervention--here is the number for Travis county and ask them about Williamson country (where we live)", so here we go. . . Down Syndrome: What No One Tells You, But What You Wish You Knew.
No one told me that I would rejoice and do the happy dance when my 2-year-old daughter perfectly says and signs "more" and actually means that she wants more. Correct word with the correct sign in the correct context. Super Ellie!
Or that I would be insanely jealous of Ellie's flexibility. Ooh, yoga toddlers! (I am also insanely jealous that she can pull off tights, tutus, and just about any other outfit.)
No one told me that in the midst of heart ache as I watch other children accomplish tasks that Ellie cannot do yet, that I would learn patience and learn to embrace our new, slow way of life.
Or that my daughter can charm the pants off of just about anyone. That she changed people's views of Ds just by her sassy grin and her entertaining antics.
Or that I can and will learn a new language (American Sign Language) in my "old" age.
No one told me that I am a member in a club that I never wanted to be in, was afraid to be in, but am now happy to be a part of. That I would "meet" so many wonderful people all because of that little something extra in Ellie's genetic material.
No one told me that how much I would love this little girl with every single fiber of my being and have this pure, unadulterated fear of ever having to spend my life without her.