Hopefully, you have also read Dr. Brian Skotko's of the Children's Hospital Down Syndrome Program blog on July 18, 2011 response. One cannot help, but love Dr. Skotko and his ability to stand up to the media, to advocate for those with Ds all while throwing in a sense of humor. He makes me wish that I lived in Boston and that Ellie received her medical care from him.
|Dr. Skotko & His Sister Kristen|
Go ahead, GQ, and mock my blue whale-emblemed Nantucket-red pants. Laugh if you want at the loud argyles that I prefer to wear with my black suit. I don’t even care if you dismiss the sexy pink polka-dotted tie that I like to wear with my blue-checkered shirt in clinic. But, whatever you do, do not mess with my sister.
My sister, Kristin, has Down syndrome, and let me explain what “Style Down Syndrome” really is. “Style Down Syndrome” is smiling when everyone else prefers to frown. It’s spending three summers, in sheer determination, learning to ride a bike because you want the freedom to be like everyone else. It’s singing tunes from Grease at the top of your lungs with your friends. It’s celebrating a third-place victory at a swim meet with as much gusto as the gold medalist.UPDATE: Video Interview with Dr. Skotko on MyFox Boston.
Now everyone on here knows that my little Ellie Bear is a fashionista. Matching bows, coordinating socks and shoes, red-heart sunglasses, fancy hats. . . the list goes on and on. My daughter has style and sass.
The same cannot be said for her mother. . .
|Ooh, this is going to haunt me, isn't it?|
To all of the John B. Thompsons out there, like Dr. Skotko, I say this MOCK MY FASHION SENSE AND NOT MY DAUGHTER OR MY AUNT!