Monday, April 16, 2012

Ellie-isms

Happy Monday!  Occasionally the antics of my little Ellie Bear are ridiculously funny and outrageously clever.  Okay, I am perhaps a bit biased, but she is one adorable little cookie.  I thought that would share of a few of her little -isms with you.

-We have been working on "fill-ins" with Ellie.  For instance, if we say "Ready" her response should be
"set go".  Now her set sounds more like Ssssss and her go sounds more like bo, but you get the picture.  On Thursday, we were hanging out in the lab for one of her routine blood draws and the phlebotomist turns to the nurse holding Ellie's arm in a vice grip and says "Ready?".  Ellie fills in with "SSSSSS BO!"  Poor little kid didn't realize she was telling them to stab her with a needle.


-Also on Thursday,  I pulled into the Lowe's parking lot to get Andrew a gift card because I am all about shopping last minute for our anniversary.  Ellie says "dada dada dada".  As we enter the store, she demands to be set down and starts screaming "dada dada dada!".  Take a wild guess where Andrew likes to take Ellie.


-Many of you know just how important Ellie's beloved blankie is to her.  We try to keep it in her crib only, but the little stinker has a really long reach and really skinny arms.  I have found her blankie unexpectedly in the freezer, the dishwasher, and in a hole in the wall.


-The concept of eating out was way beyond Ellie's cognition.  When I say we are going "out to eat", she frantically signs eat while saying Eeee and runs to the high chair.  Apparently, I am a magician because The Bear fully expects food, her preferred food of the day, to appear immediately in front of her for her consumption.  So imagine my surprise when I asked her if she wanted to go to Quizno's, she signs eat and car and did not pitch an epic fit on the way to the eatery.  Mmm mmm mmm toasty!


-An Andrew Antic: many of you have asked when our bathroom will get done after he made that little "dent" in our mold problems. . . I estimate one year, or two.


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Saturday, April 14, 2012

5 Over 10,000: Forget Me Not Friday

My friend, S, has such a tender heart for the orphans on Reece's Rainbow.  It was S who brought sweet Elden and then little Malcom to my attention.  These boys weigh so heavily on her (and my) heart.  S recently sent me an email about an observation of hers. . . you see, there are several boys listed on RR around the age of 5 with huge grants.  Grants around or above the $10,000 mark.  By now, we know that some of the children with larger grants are more likely to be adopted because, frankly, adoption costs a small ransom.  Adoption is expensive.  Adoption is not for the weak of heart.  Yet, the path to adoption can be smoothed by rescuing a child with a large grant.

These boys are all 5 or 6 years-old.  Mental Institution age.  These boys all have large grants.  These boys, however, do not have families coming to rescue them.

The purpose of this post is to spread the word that these boys are on borrowed time and still need families.

Sara (who is adopting Martin), from Foxberry Farm Almanac wrote a beautiful blog post about these sweet boys hoping to bring about awareness and hopefully to find them families.  Please, spread the word!

Elden

Brent

Preston (2H)

Alexander (2H)

Sergei (9HA)

Yegor B. 

Nicky Z. 

Megan

This precious beauty has near $24,000 in her grant!


Forget-Me-Not Friday is a blog host sponsored by Jane at Flight Platform Living with the goal of bringing about awareness of orphans with special needs in Eastern Europe.   To learn more about why this is such a cause close to my heart, please click here.

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Friday, April 13, 2012

How to Point: Teaching my daughter how to use her index finger

 *at the end of this post, I recommend two apps that were very beneficial in teaching Ellie to point.  I am not being paid to write this post although it would be very awesome to receive some compensation such as a free iPad or something exciting and whatnot.  


Pointing?  Who Cares?:
Prior to having Ellie, I took for granted pointing.  I knew that in having Down syndrome, Ellie would have delays in both fine motor development and language development.  I mistakenly assumed that pointing would come naturally and that we would use sign language prior to spoken words.  Until Ellie, I never truly realized just how much pointing serves as a means of communication.  Isolation of the index finger, as seen in pointing, is so important in forming many of the signs when conversing in American Sign Language [ASL].  Consequentially, for the longest time, SCREAM was (and at times still is) the primary language spoken by Ellie.
Confusion & Frustration:
Up until Ellie could point, I would hold up two options of food.  She would bat at them.  Sometimes she was batting at the food item to “shove it away” while other times she was batting to indicated that was the food she actually wanted.  I had to be a mind reader in order to figure out which food she truly desired.  I failed about 50% of the time.  When she started pointing, a whole new world of communication opened up.  If she pointed at a specific food, I knew that was the one she wanted.  Instead of loud, high-pitched screaming to indicated she desires something, she could now point to a toy on a shelf for me to get it down for her.  She can now formulate more intricate signs as a direct result of index finger isolation.  
Therapeutic Strategies Implemented:
Ellie took a lot longer to point than most of her friends with and without Down syndrome.  To the great frustration of myself, our therapists, and Ellie, we tried a variety of activities to help her achieve this fine motor skill.  I decorated the bottom of an empty egg carton with glitter, stickers, and fabric to encourage her to put her fingers into the bottoms of those egg shells.  I created a pegboard using an old heavy-duty cardboard shoe box.  I invested in a series of Melissa & Doug puzzles with those little knobs on them in hopes of eliciting a pincer grasp (using just the index finger and thumb to grasp an object).  I also doled out raisins one at a time to help Ellie move from the raking hand motion to the pincer grasp.  In spite of all these activities, Ellie’s fine motor abilities were not progressing.  

Exasperated! The Next Step:
Feeling like we reached a dead end (and that I was a failure because after all, no matter how hard we try, we look at our beautiful little progeny as extensions of ourselves), I did what any parent would do. . . I talked to other parents and discovered that the iPad might help.  Now, I know that not everyone can afford an iPad, but there are available grants out there for kids with special needs.  We got an old, version 1, refurbished iPad.  Meaning, we bought one used at a ridiculously cheap rate.  


I thought, “This was it!” only to discovered that many of the toddler apps were too sensitive to touch.  Ellie could just bat at the screen and something would happen (ie the cow would moo, it would move to the next flashcard, etc).  This did not promote pointing at all.  
Many other apps had the opposite problem.  They were not sensitive enough.  I would have to practically beat on the screen with my own finger to get a response.  In fact, I believe I nearly broke my hand trying to get to the next animal/body part on those evil Fisher Price apps. 
After a lot of research, trial & error, and wasted $1.99s, I have 2 iPad apps that I would like to recommend.  Both apps are less than $2.99, they are entertaining to kids, and they are educational.  What more could a mama bear want?
iPad Rules:
Now before leaving your little destructive toddler with a highly breakable iPad, I have two things to tell you.  The first is rather obvious.
  1. Supervise your bambina.  I had Ellie sit on my lap in the beginning.  I was in charge of the iPad, not the super-charged Ellie Bear.  Now, I sit on the floor with her, but she can hold it on her own, after all, I have to be free to snap my usual 20 million pictures of the spoiled princess toddler.
  2. Invest in an Otterbox case.  I am serious here.  This case, while bulky, is amazing.  I even have one for my phone.  Ellie has, unfortunately, dropped the iPad.  More than once (remember what I said about supervision?  Oops).  In fact, it crashed onto the Endocrinologist’s office floor yesterday from the exam table.  Yes, that far and. . . it DID NOT BREAK!  
I suppose I should tell you there is actually a 3rd and perhaps the most important thing: 
Do not expect your child to just start pointing automatically because she has an iPad.  It is magical, but not miraculous.  I started with Ellie sitting in my lap and I would help form her hand into a point.  I would then, with her hand formed in pointer position, guide her finger to the screen.  After a while, I would just form her hand and she had to tap the screen herself.  Finally, I stopped forming her hand.  Her pointing now extends beyond the iPad into daily activities and into some signing.  Now, I should tell you that I got a bit lazy and I never finished the above procedure for her left hand.  Her right hand does the perfect point 90% of the time while her left hand is at 30%.  


Recommended Apps:
I bet you thought I was never going to get to this section!  
  1. Starfall ABCs.  This app is derived from their website www.starfall.com which is a free website.  The app, however, costs a few, but very worthwhile bucks.  It shows all of the letters in the form of building blocks.  The child selects a letter and then the app goes through the upper case & lower case letter name and sound.  For instance, you have to tap on the “A” and is says “A, ah, apple” and moves on to alligator, astronaut, etc.  Because of this educational app, the Bear can now point and can also identify many of her letters.  

  1. Duck Duck Moose Apps.  This is actually a company that provides a series of musical, interactive apps for $1.99 each.  They offer “Wheels on the Bus”, “Old MacDonald”, and “Itsy Bitsy Spider”.  Ellie LOVES the “Old MacDonald” one.  On each page, Ellie has to tap on the animal to elicit the sound &/or and action.  The farmer, when tapped, dances.  The cow, moos and does flips.  Aside from pointing, the Duck Duck Moose Apps have some actions that require dragging the finger across the screen (yay, more fine motor exercises!) such as when opening the doors of the bus or moving the tractor across the screen. These apps also have the option of selecting a language such as English, Spanish, German, French, etc.  

Ellie and I are always looking for new and exciting apps.  Please leave a comment telling us what your child’s favorite iPad or iPhone app is!


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Thursday, April 12, 2012

A Little Girl in a White Dress

A little belated, but as promised, Easter Ellie!



Growing up, we always had two Easter egg hunts.  One was at my Grandparents Bruns' house where all of us cousins would hunt ruthlessly for the "big" egg.  The one that held a dollar as opposed to the ones filled with candy and nickels.  My cousin Brendan nearly always uncovered the coveted "big" egg.  I am relatively certain that he is extremely rich now due to all of those Easter egg hunts.



The second was at my parents' house with just me and my brother.  We would be in coordinated outfits masterfully sewn by my mother.  Our baskets were filled with chocolate and one year, they each held a beautiful stuffed, white bunny.  I ceremoniously named mine Bun-Bun and carried him around with me for years until his eyes, mouth, nose, and one ear detached themselves from his plush body.  My brother's bunny remained a pristine white complete with all body parts. Oops, I did not mean to divulge my secret about Bun-Bun.  Anyway, the eggs would be hidden indoors behind curtains and under wooden tables because it was often too chilly or rainy in St. Louis around Easter time.



One time, I escaped my bed in the middle of the night to get a glass of water.  I discovered the Easter Bunny.  Or should I say, my mom.  Still, I enjoyed our years of Easter egg hunts and now I am thrilled to be sharing the tradition with my Ellie (last year she fell asleep just before the big hunt).

no, your eyes do not deceive you.  The Bear is wearing her tennis shoes because she couldn't walk in her nice Easter shoes.

This year, it was actually warm and sunny outside.  My parents carefully hid empty pastel eggs around our backyard in what was perceived to be rather obvious places.  However, Ellie was more interested in destroying the edible grassy filling in her Easter basket rather than hunting for rabbits, err I mean eggs.  Sorry, I have Looney Tunes on my mind.



My father walked around the backyard, kicked each egg into the middle of the yard, and shouted "HEY ELLIE!  LOOK HERE!".  Ellie Bear has a great attachment to all the men in her life and her "Papa" is no different.  She gave him her undivided attention, immediately sauntered over to the egg and plopped it into her basket like a champ.



Little Miss Chunky Monkey enjoyed cracking all the eggs open, dumping them onto the grass, and then putting them back into her basket.  This continued for the remainder of our St. Louis visit.  Seriously, cheapest toys ever-plastic eggs.



Wishing you a happy belated Easter.  Tell me how your family celebrate Easter or Passover!
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Tuesday, April 10, 2012

Disaster House

Ellie and I made it safely back to Austin today and I had big plans edit all 167 Easter photos and to revel you with a witty post jam-packed with lovely photos of my ever-so-precious & ever-so-spoiled daughter.  However, when I walked into the door after getting up at 4:00am to drag a protesting toddler halfway across the country, I was welcomed to this:



And this:





It was all, mostly, somewhat, a little bit created by Andrew.  However, I was also greeted by this:







Oh yes, my friends.  New carpet!  Freshly scraped and painted ceilings!   A new ceiling fan!


The house looks fabulous and I am so grateful for Andrew spending his time away from us wisely (aka doing his highly technical day job and then moving all of our crap furniture and belongings to safer locations).

Thankfully, Andrew moved our dresser back to its rightful location.


Now I can enjoy lots of dust, plaster, carpet fibers, and paint fumes!


As for this, I am not sure what happened here.  Andrew mentioned making a "dent" in our bathroom mold problem.  Me thinks he got a bit over zealous with the sledge hammer.



Until I can get the house functional again (which will hopefully be soon!), I shall leave you all with a little sneak peek of little Miss Ellie Bear.


A special thank you to my father who captured this hilarious photo of Ellie.

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Sunday, April 8, 2012

Happy Easter!

Happy Easter! Tons of Ellie pics coming soon... Once I get the photos off of my camera (and once I am at a "real" computer). We shall be back to our regularly scheduled programming soon.

Tell about your Easter or Passover!

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Monday, April 2, 2012

Happy April: Photo Explosion

I must admit that I have nothing of substance to write about.  Okay, that is actually a lie.  I have several posts floating around in this cavernous head of mine, but I am trying to psych myself up for a solo travel trip with Ellie to St. Louis this week.  Please please pretty please reassure me that I can travel by myself with Little Miss Runner/Complainer/Uncooperative on a non-direct flight to STL!

Since I will be absent from Bloggerland for about 1.5 weeks, I will leave you with some photos of The Bear.

When I get back, I will tell you how we encouraged Ellie to point along with some iPad/iPhone apps that really help develop that awesome fine motor skill as well as Part 2 to Random Things.

Happy April everyone!  Tell me what you are doing to celebrate spring!

 I feel like Little Miss is posing for her high school senior portrait here.


That would be pollen and dirt.  Allergies anyone?




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Cecostomy Tubes R Us

Here we are - two posts in 30 days! It's scandalous, I tell you!  Seriously though, I bet you all thought that I abandoned ship and woul...