After trial an error, we finally found the right dosage in February. As in the first two doses did nothing. Nada. Zip. It was like giving her a sugar pill. So girlfriend is a bit tolerant. Eh, no surprise.
Anyway, AMAZING things have happened since then. It is as though a cloud has unblocked the sun and my Bear is thriving. To think that we were so scared to take that step and now I wonder why we didn't start as soon as she turned 4 years-old?
For starters, this happened!
|This would be before she decided to practice her artistic skills on our living room chair.|
Because she is able to sit still without eating the writing implements, we have seen great progress in her fine motor skills. She can actually grasp a crayon or marker perfectly. She is still scribbling, but we are starting to see some purposeful horizontal and vertical lines. At the end of the school year, if her OT placed her hand on top of Ellie's, she was able to write her name! Now, coloring is a favorite activity of hers. No paper or writing utensil is safe from her little hands!
Another major advancement is her communication! Because Ellie now has the ability to attend for short periods of time, she is able to learn signs and tries to string them together. She is now able to watch our mouths and try to imitate sounds. It is all very garbled and her "hi" still sounds like a scream, but she tries to say bus [*ss], juice, cracker, car, ball, baby, bye, dada, mama, cat [ack], mouse, Mickey [icky], and yes. Oh and the all important "cookie". The word "open" still sounds like "a-baby" which I still don't understand why, but at least we know what it is.
|Doesn't everyone keep flashcards in their backpack?|
A big concern for many parents is "will this make my kid a zombie?" or "will this change her pseronality?" For Ellie, the answer is no. Girlfriend is still very sassy, spunky and quite ornery. She loves to get into trouble. She practices her selective hearing when she doesn't want to do something.
|That would be our electric bill|
We still see this, but it is purposeful and without a possessed look about her.
The main side effect that we have seen is decreased appetite. She did lose 1.5 lb initially, but was stable up until a month ago. Her most recent weight loss is related to her GI issues. Pre-GI, she wouldn't eat until the afternoon when her medication would wear off. She would eat a large afternoon snack, a large dinner, and a large bedtime snack!
We have tried drug holidays on the weekend and it was disastrous. For her (and for us). She would be outside and want to play in the sandbox, but she just couldn't. She had to run, climb, and spin around. She would keep returning to the sandbox and then frustrated because her mind would tell her otherwise. It was devastating to watch. It was as though she finally knew what she was missing.
The school year will start in just a few days. With her late September birthday, she will have another year of Pre-K. I am really excited to see what this year brings!