Showing posts with label lead toxicity. Show all posts
Showing posts with label lead toxicity. Show all posts

Monday, August 19, 2013

On Leaded Ground: an update on lead poisoning

I feel as though I am beating my head against a brick wall and I am not holding out a lot of hope that I will pinpoint the source of lead that is poisoning my Ellie Bear.

Using the home testing kit, I have investigated: the paint on the window-sills, an old set of blinds, the built-in shelves, the doors near the hinges, and the metal casings on the windows. You must thoroughly clean each site and be sure to scrape down through all layers of paint/glaze so my house has some scratched up, notched out doors, shelves, and window sills.  I also tested: her baby dolls, puzzles, flashcards, Little People from a consignment sale, dishes, cups, straws, and utensils.   I tested all of her chewy tubes as well. It was really quite morbid--I had to carve out pieces of the baby doll and her Little People, etc to get through all layers of vinyl/plastic/paint.  
Everything has come up negative.  Of course, there can always be false negatives.

The only thing that I have discovered is just how disgustingly dirty our house is.

I am confident that our house is safe given the results of the home test kit and the fact that our house was built after 1978.  However, I still have surrounding soil and the elementary school to investigate.  Additionally, I had my lead levels checked and I have no lead in my blood so I am thinking that our pipes are okay.


A few weeks ago, I had an interesting phone call with The Texas Department of Health and Human Services.  Interesting because I cannot figure out exactly what happened.  This woman, while very kind, seemed somewhat knowledgeable, but also did not speak in cohesive sentences and seemed to give out some inappropriate advice.  I did take away the following:

  • Her lead levels are high, but not high enough for the Department of Health to test our house.  
  • We should retest in 6 months to see to see if her body is flushing out the lead or if she is being continually exposed.
  • We also don't know when Ellie was exposed as it takes anywhere from weeks to years for lead to build up in the blood.
  • Apparently, my daughter may have anemia or thalassemia.  She should see hematology.  Ummmm, okay.  I get the anemia part as iron and lead compete for the same binding sites in the blood and lead tends to win out so you have less iron in the blood--hence the development of iron-deficiency anemia.  Yet, I am not sure why she is thinking thalassemia though and her explanation didn't really ring evidence-based to me.
  • More children from Ellie's class must show signs of lead poisoning or have lab-verified high levels of lead in their blood before the school will be tested by the Department of Health.
  • Schools do not keep records.  Well they might.  Yet, they may not be available.  We may need a lawyer to access the results.  But we may not.  But they probably don't have a record.  She isn't sure who I would contact to get this information--I told you it was an interesting conversation.
  • Lead tastes sweet so it is not uncommon for kids to be naturally drawn to materials with lead in them.
  • There is a theory that children with Down syndrome and children with autism have missing cellular villi in their gut (the tiny little hairs in the intestines).  These missing villi affect the absorption of lead.
  • Ellie may need a bronchoscopy if she swallowed an object made with lead.  This would not be covered by insurance unless her lead levels were in the 200s, which they are not. 

With regards to the school, Ellie's class is full of children under the age of 6 who have speech delays, behavioral issues, and other developmental delays--all signs of lead toxicity.  The question is: are these delays exacerbated by lead or are these delays apart of their underlying disorder /syndrome/ illeness?  I will be talking to her teacher and contacting the parents from last year to notify them of Ellie's elevated lead levels so that they may have their children tested.  I plan to speak with the principal to find out if her school has been tested for lead in the past and how I could access those results.

I will also be stealing soil from the school's playground and sending that out for testing.  This costs money.  I am not sure how much, but I think it would be well worth it.




Many of you have asked about certain supplements to help the body rid itself of lead. A sort of natural detox or chelation therapy.

The kind lady that I spoke with at the Department of Health who was just spouting off random things kept telling us to generously supplement Ellie with iron until she gets constipated and her stools turn black. And then to keep on supplementing.  Iron likes to hang out in the red blood cells [RBC]. This is good.  RBCs carry oxygen around to the cells and you want those bad boys functioning properly. The binding sites in RBCs tend to prefer lead over iron.  This means that the body excretes iron and the lead accumulates in the blood.  This is not good.  Being tired and pale are signs of iron-deficiency anemia.    A simple CBC [complete blood count] can tell you if your child has anemia.  My concern about flooding Ellie with iron supplements is this--iron toxicity [the signs of iron toxicity are quite scary and include intestinal damage such as bloody vomit, seizures, coma, liver damage, and clotting problems].  Her PCP did not recommend iron supplements because Ellie does not have anemia, but some health care providers might and it is all dependent upon the results of your child's blood work.  Again, do not run out and buy iron supplements unless our child's PCP tells you to.

If you are advised to supplement with iron, administer it with Vitamin C, such as a glass of orange juice.  The Vitamin C helps aide the absorption of Iron.  Milk, on the other hand, decreases the absorption.  This stands to reason that foods with Vitamin C such as citrus, berries, and many veggies, will help iron bind to sites in the RBCs and possibly displace the lead.  Therefore, lowing lead levels.

Just as lead can be floating around in the blood, it can also accumulate in the bones.  There are thoughts that Vitamin D actually increases the lead levels where as other studies suggest it lowers lead levels.  Talk about confusing!  That is because it is the same for calcium as it is for iron.  Calcium requires Vitamin D to help deposit itself into the bones.  Low Vitamin D means, less calcium absorption, and therefore weaker bones.  When calcium displaces lead from the bones, the lead is released into the blood. Most of the studies I have read recommend Vitamin D3 supplements along with a diet high in calcium. (Remember back when Bear had rickets/ very low Vitamin D levels?!)

I also read that Selenium, Cilantro, and Garlic have also been proven to reduce heavy metal (i.e. lead, mercury) levels in chickens. I wonder if the same can be said for humans?

Again, before starting any supplement, please speak with your child's health care provider.

Right now I am sticking with an over-the-counter multi-vitamin and Vitamin D3 while maintaining a diet rich in fruits (veggies when I can sneak them in) and iron-fortified bread products and dairy for Ellie. The Bear is predominantly a vegetarian.  She is clearly not my child nor a true Texan.  Otherwise, I would make sure she gets some healthy proteins in the form of chicken, turkey, and brisket.




I would also like to share with you potential sources of lead that friends have suggested:

  • Playground equipment with chipped paint
  • Sandboxes 
  • Toy jewelry
  • Hand-me-down toys, consignment shop toys, toys where you do not know how old they are
  • Toys from China
  • Toys at the school
  • Non-Crayola Chalk
  • Wires from lamps and extension cords
  • Plumbing-the lead soldering joining copper pipes together
  • Glaze on bathtubs


At this point, I would not be surprised if we never found the source of lead.  It could be an accumulation of lead from several areas seeing as Bear likes to mouth objects and taste sand from playgrounds.  It could be the school, but it could also be a playground.  It could still also be our home-from leaded soil tracked into our house.


*Please note that this post does not substitute any medical advice from your child's health care provider.  This post is to share my experience and only that. If you have concerns that your child has elevated lead levels, please contact your child's pediatrician.  Please do not stop or start any medications or supplements without speaking with your child's health care provider.*



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Thursday, July 25, 2013

My daughter has been poisoned

"Anna, we thought that we had gotten all her labs back last week, but this one just came in.  It is her lead level and it is high."

My Ellie is suffering from lead toxicity.

This lead is poisoning my baby.

This lead is what has been making her so tired.

This lead is what zapped her energy and made her very agitated.


My mama gut did not fail me.  Her pediatrician did.  I brushed off.  Ignored.  Nearly 3 weeks ago I brought Ellie into her PCP's office for cellulitis.  I mentioned that she was extremely tired and had no energy over the past 2 weeks.  A child with ADHD and the hyperactivity was entirely gone.  The doc brushed it off as a growth spurt.  I knew it wasn't "just a growth spurt".  I assumed thyroid (thyroid disorders are common in people with Down syndrome) or virus as did the Developmental Pediatrician that I contacted after the brush-off from the PCP.  Dr. F also threw in a lead level just for fun.  I am glad that she did.

Is our water contaminated?


What are the sign's of lead toxicity and is it serious?
Signs:

  • Fatigue
  • Irritability
  • Poor growth or weight loss
  • Learning disability
  • Vomiting
  • Constipation


For those of you who have children with Ds, you can see why it is easy to miss lead poisoning as poor growth, developmental delays, and constipation can all be attributed to that extra chromosome.  Yes, lead toxicity is serious.  High lead levels can lead to learning difficulties and mental problems.  Seriously high levels can lead to seizures, coma, and death.



Testing 101:

All children are screened for lead, but not all children have blood levels drawn at their well child check.  What that means is parents are asked "does your child live in a house that was built before 1978?"  That is the screening.  If the answer is yes or don't know, blood is drawn to measure the amount of lead present.  If the answer is no, typically nothing is done.  Our answer has always been no.

Many older homes contain lead paint and lead in the water pipe soldering.  Flaking paint and home renovations that release lead into house dust can lead to lead toxicity.  Children under the age of 6 years are especially vulnerable to high blood lead levels.

Certain hobbies such as welding and stain glass making as well as certain jobs such as auto repair put people at higher risk because they are working with lead.  Even many home remedies, certain make-ups containing kohl and Surma, and various types of pottery contain lead.

The thing is, none of the above applies to Ellie.



No lead in the donuts!


The question is where did she get it?

After receiving that horrifying phone call, Andrew and I have been staring bug-eyed at all of her toys.  Every toy she touches could be poison.  We are paranoid.  Every eating utensil, sippy cup, and plate.  Even her books and puzzles.

In the last few years there have been recalled toys due to the presence of lead paint.  Most of these toys are imported from China (isn't nearly everything?).  A list of recalls can be found at:

https://www.cpsc.gov/en/

The items are listed from new to old.  Go back.  Way back.  Is your child playing with your old toys?  Or toys from a consignment shop?  Chalk.  I have read that unless it is the Crayola brand, chalk could be contaminated by this poisonous metal.  Maybe even the same with crayons as I saw a Toys R Us recall from 2007 related to the box housing the crayons.  Did you know that  books printed before 1986 could contain lead in the ink?  That libraries have actually been discouraged from possessing such books?  The risk is minimal and yet, if you have a child who mouths everything, it doesn't seem so minimal.

What about her school? Her therapy clinic? The CDC recommends looking into places that your child resides in more than 6 hours a week--buildings constructed before 1978.  Sleuthing on the internet suggests that her school was built in 1977.  Do they have lead paint?  What about soldering on the pipes?  What about the playground?

Yes, there could be lead there, but many construction companies ceased using lead prior to the 1978 ban.  Still, it warrants being looked into.


Is it lurking in our house?



How long has this been going on?
Lead can take from months-to-years to accumulate in the blood.  Is this something that has been building up in the past few months or has she had high lead levels since she could first crawl?

Back in 2012, the Center for Disease Control [CDC] updated their lead protocol by lowering the acceptable amount of lead in the blood from 10 mcg/dl to 5 mcg/dl.  If Ellie had her lead levels checked last year, it would have been deemed normal.

www.cdc.gov/nceh/lead


The thing is, I don't care.  A lead level of 7 mcg/dl is still too high.  A lead level of 5 mcg/dl, too high.

So now what do we do?

Texas Department of State Health


At this point, Ellie's lead level is not high enough to warrant chelation therapy (a level >45 mcg/dl).  We need to  uncover the offending toy/utensil/agent and remove it from our house/school.  Eventually, over time, her lead levels should return to normal.  Andrew purchased the 3M Lead Test Kit off of Amazon.  I have contacted the Department of Health to inquire about soil, paint and pipe soldering testing around our house and her school.



I feel as though we are looking for a needle in a haystack.




References:
Center for Disease Control: www.cdc.gov/nceh/lead/

Consumer Product Safety Commission: www.cpsc.gov

Mayo Clinic (2011): Lead Poisoning www.mayoclinic.com/health/lead-poisoning/

Fox News (2009): Lead feared in children's books. http://www.foxnews.com/story/0,2933,509614,00.html

Snopes.com (2007): Chalk Talk

CNN Money (2007): Toys R Us recalls crayon boxes for lead paint

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