Monday, May 5, 2014

Proper lip closer, straw drinking, and ARK Therapeutics GIVE AWAY

When Ellie Bear was transitioning off of a bottle, we [we being the collective of myself, Andrew, and therapists] immediately implemented the straw cup.  Our thoughts were "most places have straws, but none have sippy cups".  Ellie started to drink rather quickly from a straw which was really quite impressive given the fact that most children Down syndrome have low muscle tone or hypotonia.  This means that the muscles of her tongue, lips, cheeks, and jaw muscles have low tone and difficulty coordinating.

Until recently, I never really paid attention to how she drank from her straw cup.  Ellie was inhaling the entire straw.  Not only that, she was not achieving lip closure, which is very important for not only drinking but also for speech sound production!  Rather than pursing her upper and lower lips around the straw, she was using her tongue as a base; a substitute for her lower lip.  This meant the straw was going into her mouth more than 3/4 inch!  Ellie also likes to bite the straw which can be quite a pain as it cracks both the cheap restaurant straws and the thicker plastic straws.  Girlfriend has quite the bite! Ellie is also unable to obtain proper lip closure around those narrow, tiny straws that you see with juice boxes and Capri Suns (think coffee-stirrer-type straws).  Her tongue would protrude and the juice would dribble down her chin and all over her clothes.

It is difficult to see but her tongue is supporting the straw.
The straw is also pretty far into her mouth.


For the past month, we started implementing the Lip Blok through ARK Therapeutics.  This company provides a wide variety of sensory and feeding materials for children.  Yes, chewy tubes!  The bear cup! Various feeding spoons!  Here is where I tell you: I was contacted by ARK Therapeutics to write a review on one of their products.  Knowing that Ellie needed help drinking from a straw, I chose the One-Way Straw with Lip Blok Kit.  While I am not being paid monetarily to write this post, I did receive the Straw Lip Blok Kit for free to write a review on it.  The opinions in this post are entirely my own.

At this point, you are probably wondering what a Lip Blok is.  It is this:



Essentially lovely thing prevents the child from pulling the straw too far into the mouth.  It encourages the rounded lip closure using the bottom and upper lip.  It discourages tongue thrusting by forcing the tongue to retract back into the mouth/oral cavity. It also prevents the dreaded straw biting and thus straw cracking/breakage. It is advised to start at 3/4-inch and then decrease to 1/2-inch and further to 1/4-inch.

The kit also came with 3 straws that have a one-way valve and clips.  Ellie was adamant that we use the yellow straw because yellow is awesome by Bear standards.



During speech therapy, we placed the straw into Ellie's mouth and marked where her lips were hitting the straw.  It measured at ~ 3/4 inches, which was the size of our Lip Blok.  We inserted Lip Blok into the straw and let her get used to it.  Now that she has gotten the hang of it, we have swapped it out for the 1/2-inch Lip Blok.  This requires Ellie to work a little harder at getting her tongue, lips, and cheeks into the correct position for drinking.  She is fighting me a bit, but it is slowly getting easier for her.  After she masters the 1/2-inch, we will then move on to the 1/4-inch Lip Blok.



My Review of the ARK Therapeutic 3-Straw Clip with Lip Blok Kit

Pros:

  • The straws have little clips on the side of them so that you can clip it to an open cup.  This prevents the straw from slip-sliding around.
  • The Lip Blok is BPA-free, Lead-free, phthalates-free, and PVC-free
  • The Lip Blok is also latex-free which is a big deal for me since I have a latex allergy.
  • The Lip Blok very easy to toss into my purse or the diaper bag.  It is nice to not have to lug a cup around.
  • The Lip Blok fits into regular straws that you find at restaurants--just insert the long end into the straw.
  • The Lip Blok also fits swirly straws--slide the long end of the Lip Blok over the swirly straw.
  • The Lip Blok is also dishwasher safe. . .  did you hear me?  Dishwashers safe!  
  • ALL the products by ARK Therapeutics are easy on the wallet.  Honestly, wish I found them earlier when I was scavenging for chewy tubes.  I would have saved myself a pretty penny!
  • ARK Therapeutics has great customer service.  See below.


Cons:
This is not actually about the product, but the way the directions and website are worded.  I requested the ARK's One-Way Straw Clip Assembly.  The description says:


ARK's Straw Clip helps manage difficult situations by holding the straw securely to the cup. Assembly includes: 3 one-way straws with a built-in valve, 3 Straw Clips, and 1 Lip Blok™. Colors may vary.


I received the 3 straws with clips and the 1 Lip Blok.  When I read the directions, they said that I could trim the Lip Blok using a scissors.  It even showed a pictorial diagram of the scissors trimming the Lip Blok. I thought that was pretty doubtful as the Lip Blok I received was really firm.  The directions discussed starting off at 3/4 inches then trimming to 1/2 inch and eventually ending up at 1/4 inch.  Needless to say, I was unable to trim the Lip Blok and partially massacred it in the process.

Apparently, there are various types of Lip Bloks offered from ARK Therapeutics--flexible Lip Bloks and firm Lip Bloks. The Flexible Bloks can be trimmed.  The Firm ones, cannot.  This did not seem very clear to me.  The customer service reps at ARK Therapeutics explained this to me and were kind enough to send me Lip Blok 3-sized Hierarchy Kit.  They arrived very promptly in the mail and I was able to start Ellie on the 1/2-inch Lip Blok immediately.

Therefore, if you decide to purchase any of the Lip Bloks or kits that include Lip Bloks, read very carefully and do not hesitate to contact customer services with questions.

She actually doesn't need my help holding the cup or the straw. . .
I am just trying to prevent her from dumping the water out.


ARK Therapeutics is offering Ellie Bear's readers a 10% off all products through June 15, 2014.  Be sure to enter coupon code ELLIEBEAR10 at the check out to get your 10% off!

Additionally, they are sponsoring a giveaway this week for the Every Lip Blok Combo which includes 3 sizes of Lip Bloks [1/4, 1/2, 3/4-inch] plus two flexible Lip Bloks that can be trimmed to any length [see link below for details about the product].  To enter, please answer in the comments below "What are the therapy goals are you and your child working on this summer?  The give away ends at Midnight CST on Sunday May 11, 2014.  http://www.arktherapeutic.com/ELBL100AR.html

Photobucket

8 comments:

  1. This is a great, real-life review, in my opinion. It's always hard to tell from websites or "testimonials" on said websites if the product is really useful or not. Owen is working SO hard on the lip closure thing with spoons and forks. He is really starting to do well, usually 9 out of 10 tries he has it down. We are adding a second day of speech/feeding therapy this summer and I think that moving to the straw with lip blok will be on that list. In the past he has been so weak with his lips and closure that we didn't even bother with it. But he is much stronger than he was even 6 months ago. So we'd love to give it a shot!

    ReplyDelete
  2. My personal therapy goal is to chill out and be kinder to myself. However, Kimani is working on drinking properly and not losing the last mouthful (or spitting it out) and that kit would be perfect for her. In fact I think they are doing something like that at school.

    ReplyDelete
  3. Very interesting! My son transitioned to Honey Bear cup when he was 12 months old, and now we're working on transitioning him to other straws. Caleb uses his tongue under the straw too, so we're really working on that lip rounding/closer and keeping the tongue back.

    ReplyDelete
  4. My daughter Tabitha (about 18 months old) will be working on walking this summer. She eats well with her fingers, so I think we'll be introducing spoons and other things soon. I'd love her to know how to drink from a straw -this set looks really helpful.

    ReplyDelete
  5. This is a great review! We were just told by our speech therapy to look into getting these to help Ryder keep his tongue in his mouth. I'd love to win these so I don't have to purchase them. :). We are also working on self-feeding and dressing and jumping and running.

    ReplyDelete
  6. Wow! I just ran into your blog at 2 am on finals night studying for my ESE (how to teach Special Education) course. Your story- Ellie's story- has taken all the medical and "teacher" terms I have to memorize, and put both purpose and heart behind them. Thank you for reminding me of why I am doing this! God bless you and your amazing family! :)

    ReplyDelete
    Replies
    1. Thanks! Such a great compliment and I appreciate it. Good luck on your finals!

      Delete
  7. Goals? For Nathan to talk, of course! He's progressing, but slowly. He uses his tongue the way you described and chews his straws, too - drives me nuts!

    ReplyDelete

I love your comments and I read each and every single one of them.