We discussed Ellie's urinary issues where she strains to urinate and then may pees in her diaper 20 minutes later. We also discussed her urinary retention issues. There are a few options. None of which I am thrilled about.
|Someone will only keep her glasses on in 5 minute increments.|
The first option is to put her on the cath program. Essentially, we would have to catheterize her 3 x day. This is where you take a catheter (a tube) and insert it through the urethra into the bladder to allow urine to flow out of the tube. Obviously, this is not a good option for Ellie. It would take at least 2 people to hold her down while I catheterize her. Totally not happening.
The second option is a vesicostomy. This is where you bring the bladder to the surface of the stomach to allow urine to drain. She would have to wear a diaper to catch the urine and it would mean another surgery.
Fortunately, Ellie's kidneys, while small, are looking okay on ultrasound. So I decided that we need to go with a wait and see approach. Ellie will continue to get renal and bladder ultrasounds every 6 months. If it starts to look like there is kidney damage, we will have to look at those 2 options. I figure that her kidneys have been looking good for the past 2 years so they should continue to remain healthy.
I was really hoping for a few months of calmness, but I guess that is too much to ask for. I am feeling down about all of this. Ellie always has something going on. We just cannot catch a break. Out of all of these health issues, only the sleep apnea is related to her having Down syndrome. I do not know why she has all of this, but I feel bad for her and I am sick of it all. Fortunately, most of these issues are minor and she is relatively healthy.
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