In other news, where I last left off, Ellie hadn't had a bowel movement in 19 days. GI wasn't coming up with a good solution or taking me seriously. Well, after 21 days, they had us come in for an office visit. The new plan was to give a SMOG enema through the cecostomy tube. Usually, we put in normal saline. A SMOG enema is saline, mineral oil, and glycerin. These are the types of enemas we used to give Ellie rectally. That night, I was supposed to give 180 mL of a SMOG enema followed by 180 mL of saline. Well, I only got in 30 mL of the SMOG enema before the tube clogged. Did all the oil and glycerin clog the tube or was there a big ole piece of stool blocking the tube? I waited a while and was able to get some saline in. I called GI in full on panic mode and asked if I could mix the 180 mL of saline with the 180 mL of the SMOG enema to make it less viscous and it worked! I was able to get all of it in and we got results!
The following day Ellie had her Chait Trapdoor placed. This is the permanent button in her colon. It was a quick day surgery and she recovered nicely. They used guided x-rays to place the Chait Trapdoor and we discovered that after 22 days, her colon was cleaned out! The post-op nurse spent a great deal of time going over what to do if the button comes out. Apparently, this is a common thing. Yet, if you see what the Chait Trapdoor looks like, you'd think it would hurt if pulled on.
We are now doing every other day saline enemas and they seem to be working (I don't want to jinx this so I am knocking on wood right now). Even though it has been nearly 2 weeks since the button was place, Ellie is still having a lot of pain when I open/shut the trapdoor and when I attach the adapter device. I called Radiology to see if this amount of pain is normal this far out, but of course I never heard back.
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