|Ellie after her GI visit on Tuesday.|
By Tuesday, Ellie had not had a bowel movement in 9 days. She had 4-8 x increase in her daily Miralax, Exlax x 2, Milk of Magnesia x 1, a glycerin suppository, 1 enema and 1 enema that I couldn't get into her. This is along with her probiotics, juice, and a ridiculous berry consumption.
Ellie's X-ray showed normal bowel gas patterns which means gas was able to move through her intestinal tract. Translation: no bowel obstruction! There was moderate impaction from her ascending colon to the rectal-sigmoid colon. Translation: moderate constipation throughout most of large intestine excluding the rectal vault. Dr. S asked me if she went and didn't tell me since he expected to see much more stool on the Xray. I incredulously looked at him and said "um, she is in a diaper so I am the one changing her and school gives me a daily report over the phone". I was very thankful that she wasn't more backed than she was given how long it had been.
|Bear is still up to her usual antics|
There is a thought that Ellie's colon is moving very slowly. This is called delayed transit. Basically the stool does not move through the gut like the majority of the population's does. As such, more and more water is reabsorbed into the intestine making the stool hard. Hard stool = constipation and as such makes it much more difficult for Ellie to go. The confusing part is why her rectum is consistently empty. The doc has no explanation and is confounded. I am finally being listened to! Three different GIs have told me that she is stool withholding. This is impossible. The urge to go is felt in the rectum and if her rectum is empty. . . well you get the point.
To determine Ellie's gut motility, we are conducting a Sitzmarker Test aka Colon Transit Study. This morning I force-fed 2 spoonfuls of yogurt containing 24 tiny radio-opaque rings that will show up on an X-ray. On Monday, Ellie will have another abdominal X-ray. They will count the number of rings in her colon and also look at the location of the rings. Retaining 13 rings is considered within normal limits. A repeat X-ray on Wednesday may also be necessary.
This is for an adult--they take 3 capsules, not 1 like Ellie.
Finally, Ellie is in the process of starving herself. Last Monday 7/14, Ellie weighed in at 30.4 lb. On Tuesday, she was down to 29.2 lb. I am afraid to weigh her today. On Tuesday, Ellie stopped drinking but was eating small amounts of food. On Wednesday, she stopped eating but did drink. After 40 hours of not eating, today she had a mini lunch at Quizno's. She is also drinking. She is not sleeping very well and as such is a little more wild and cranky. I feel horrible for Ellie. She must be positively uncomfortable. I am really looking forward to getting some answers in the next week.
|Desperate times call for desperate measures: Quizno's|
Blowing y'all a kiss!!!