tag:blogger.com,1999:blog-1704406957662088168.post5840576995550124918..comments2024-03-10T01:35:52.015-06:00Comments on The Chronicles of Ellie Bellie Bear: The Return of Ellie Bellie Bear : Updates all aroundAnna Theurerhttp://www.blogger.com/profile/06937391910402532608noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-1704406957662088168.post-61057949201215451162016-04-29T03:52:23.505-05:002016-04-29T03:52:23.505-05:00I'm thrilled things are going so well for you ...I'm thrilled things are going so well for you both! I've missed you here & on FB... please let me know when you're in town next so we can catch up. xoxo, k.krlrhttps://www.blogger.com/profile/14392064691347464660noreply@blogger.comtag:blogger.com,1999:blog-1704406957662088168.post-53032598480114550762016-04-25T17:28:39.366-05:002016-04-25T17:28:39.366-05:00I just came across this post - I think I missed a ...I just came across this post - I think I missed a few. I love the bit with the conversation - hilarious. I'm glad that you're both doing better in some areas.Jennyhttps://www.blogger.com/profile/15095569628039495501noreply@blogger.comtag:blogger.com,1999:blog-1704406957662088168.post-69930603495255271272016-04-24T19:53:31.553-05:002016-04-24T19:53:31.553-05:00Came across your blog randomly, saw that you'r...Came across your blog randomly, saw that you're battling with the dreaded "stomach/colon inflammation with no known cause," figured I'd suggest something that worked for me when I had stomach pain so bad it sent me to the emergency room: food sensitivity testing! Food sensitivities can develop and change over time, unlike allergies, and are also harder to detect than allergies because they tend to take effect in hours instead of minutes. And sometimes, eating some of one food you're sensitive to will be okay, but eating two different sensitive foods, or too much of the food, will cause a reaction. So it's very difficult to figure out!<br /><br />The blood test and diet that I did for my sensitivities was the MRT/LEAP (MRT is the test, LEAP is the diet), but I think there might be even newer and more accurate tests out there now. It's definitely one of those technologies that's getting better and better right now, as it was previously not a very well-understood area of nutrition (and still isn't, to a certain extent-- but we're learning!).<br /><br />You can also try to prevent sensitivities by doing a rotation diet where she eats foods from a particular food group for only one day out of every three-- so, Monday is a "wheat day" and an "egg day" and a "yeast day" and you have bread and scrambled eggs on Monday, then no bread or eggs Tuesday or Wednesday. Some foods are more likely to be a culprit for sensitivities than others, too, so just eliminating common causes of food sensitivities (like wheat, eggs, nuts, and milk-- yes, even if you're not lactose-intolerant, you can still have a sensitivity to milk) for a while and seeing if it helps might be a good thing to try. Of course, as a "not exactly neurotypical" person myself, I realize that having diet be a non-constant thing when dealing with Down's may be a lot harder than it sounds... but as soothing as it is to have the same food every day, even if it's healthy food, it can cause sensitivities in the long run! <br /><br />It turns out that people with sensitive immune systems are prone to getting their bodies overwhelmed by eating too much of the same thing, so the immune system starts acting up and causing inflammation whenever it detects that food. I tried to be healthy by eating lots of grilled chicken instead of red meat-- and ended up sensitized to chicken because I ate too much chicken too often, and it caused me inflammation and pain instead of good health! And after eating too much raspberry yoghurt, I even became sensitive to raspberries of all things! But after doing a strict diet for a while (which was admittedly miserable), I was able to go back to a relatively normal diet with no more pain. (Although I still can't have Klondike bars or other ice cream with certain emulsifiers in it, and no sodas with Yellow #5, alas.)<br /><br />So, I hope that this suggestion may be useful to you or help you narrow down on what might be causing poor Ellie's tummy troubles. A food sensitivity diet may be a pain, but it's better than an enema every week I think! And since you can get testing or just try different things with diet changes, it's relatively easy to test for food sensitivities, and getting much easier to do as a diet now that grocery stores are stocking all kinds of gluten-free and allergen-free foods. Kathttps://www.blogger.com/profile/08017290465784379767noreply@blogger.comtag:blogger.com,1999:blog-1704406957662088168.post-26389906007947275582016-04-22T06:53:59.638-05:002016-04-22T06:53:59.638-05:00I just wanted to make a quick comment to say GREAT...I just wanted to make a quick comment to say GREAT blog!….. I’ll be checking in on a regularly now….Keep up the good work<br /><br /><br /><a href="http://anaesthesiamachine.in/" rel="nofollow">anaesthesia machine manufacturers</a><br />Anonymoushttps://www.blogger.com/profile/18129431389954655565noreply@blogger.comtag:blogger.com,1999:blog-1704406957662088168.post-75474151497538008152016-04-20T10:13:59.447-05:002016-04-20T10:13:59.447-05:00Your little girl is so beautiful and a blessing fr...Your little girl is so beautiful and a blessing from God. Good job being a strong advocate for her. You rock! Don't let anyone Dis her Ability!<br />Blessings and hugsAnonymoushttps://www.blogger.com/profile/14122080709471310350noreply@blogger.comtag:blogger.com,1999:blog-1704406957662088168.post-18937278009834381662016-04-13T18:07:55.191-05:002016-04-13T18:07:55.191-05:00She's such a doll! Thanks for the update and w...She's such a doll! Thanks for the update and welcome back!Cindyhttps://www.blogger.com/profile/13760897671143549963noreply@blogger.comtag:blogger.com,1999:blog-1704406957662088168.post-90526866950706777122016-04-05T11:31:43.278-05:002016-04-05T11:31:43.278-05:00Great update....good to hear that you are seeing s...Great update....good to hear that you are seeing some positive changes even if things are still stumping the doctors. I had to laugh about her language....I could care less if Owen uses swear words or not, if he is saying something I would be overjoyed. :)Anonymoushttps://www.blogger.com/profile/17913754866057778005noreply@blogger.com